An Open Letter to the Boston Globe

Michelle Tressler Massachusetts is at the epicenter of Lyme disease, an infectious disease that is estimated to be six times more common than HIV/AIDS. The Boston Globe’s misleading editorial regarding pending Lyme disease legislation on Beacon Hill reflects a fundamental failure to understand the science and politics of Lyme disease and suggests an astonishing degree […]

Category: Boston Globe, CDC, Failure of the IDSA, IDSA, ILADS · Tags:

Phyllis Mervine’s Remarks to the CDC (June 11, 2013)

After decades of broken promises and government neglect, a leading patient advocate remains cynical. The following text is excerpted from Phyllis Mervine’s presentation to the CDC during a conference call to their meeting in Ft. Collins, Colorado, on June 11. Her remarks were presented at the invitation of Ben Beard, chief of the CDC Bacterial […]

LYME STORIES: Kathy White (Kansas City)

TOUCHED BY LYME: KC’s Kathy White, telling it like it is to the CDC 20th June 2013 This Lyme advocate had to miss a planned meeting with CDC officials because she had a stroke. She delivered her presentation to them from her hospital bed, via telephone. Here’s what she said. Hello. My name is Kathy […]

The Trouble with Lyme Testing

LYMEPOLICYWONK: The CDC, the FDA and Lyme Disease Lab Tests: Two-Tiered Tests, IGeneX, the C6, and the New Culture Test The CDC website now states that before the CDC will recommend new tests, “their performance must be demonstrated to be equal to or better than the results of the existing procedure, and they must be […]

Petition the US Senate!

Please join us in signing the petition! -Enid

The FOIA Request of the CDC TOOK 5 YEARS!

More from Kris Newby, providing the back story of what Mary Jo Pfeiffer reported on in her recent Poughkeepsie Journal article on the CDC, NIH, IDSA and the FOIA: http://ire.org/blog/transparency-watch/2013/05/20/foia-request-cdc-took-five-years-fulfill/

Lyme: The Ties that Bind (Poughkeepsie Journal)

Dear Folks, I don’t want people to miss that you can access the actual emails sent between the IDSA guidelines authors and CDC/NIH officials by clicking inside the red boxes on the following site: http://pojonews.co/189JjW3 I found them to be very revealing. There clearly is a cosy relationship between the two groups. It is also […]

Category: CDC, Failure of the IDSA, IDSA, NIH · Tags: