LYME STORIES: Richard Gerstner | Ally Hilfiger

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LYME STORIES: Dr Enid Haller (West Tisbury MA)

Senator Bloomingthal, My name is Dr. Enid Haller and I have a story to tell. I was born in a small town in Pennsylvania in 1960 with Attention-Deficit Hyperactivity Disorder. Back then, no one knew what it was or how to treat it. I was one of the earliest kids to be put on the […]

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LYME STORIES: Dr. Debbie & Jade Heverly

Ours is a “double story”. There are two of us whose lives have been intertwined and interrupted by the “mysterious” illness that turned out to be chronic neuroborreliosis. I am a Medical Doctor who was board certified in emergency medicine and family practice. I was educated in Pennsylvania schools and at Temple Medical, practicing for […]

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LYME STORIES: Steve Cabana (Martha’s Vineyard)

Submitted at US Senator Blumenthal’s request for sharing personal experiences … At my summer home on Marthas Vineyard in June of 2009, I found two engorged deer ticks at the foot of my bed. The next three nights I woke up drenched with sweat. I chose to ignore it. In September of 09, I went […]

LYME STORIES: Mark Hopwood (Trumbull, CT)

Testimony of Mark Hopwood (Trumbull, Connecicut) Field hearing of the Senate Committee on Health, Education, Labor, and Pensions August 30th, 2012 I have been struggling with Lyme disease for more than three years. Before the onset of symptoms, I was an active parent, worked 12 hours a day at my own business, worked out 3-5 […]

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LYME STORIES: Katy Reid (Ridgefield, CT)

Testimony of Katy Reid (Ridgefield, Connecticut) to the Senate Committee on Health, Education, Labor, and Pensions on August 30, 2012 I have always told people that I’ve been sick for over 11 years. But, there is something inherently wrong with that statement. It implies bad luck, chance, something beyond the realm of our control. But […]

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LYME STORIES: Dwight Harris

Testimony of Dwight Harris to the Senate Committee on Health, Education, Labor, and Pensions on August 30, 2012 Thank you for permitting me to testify to you today about my experiences from infection with Lyme Disease and other associated tick infections. I would like you know my medical history as it relates to this terribly […]

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WBUR Series — “Living With Lyme”

From June 25-29, WBUR is explored this public health issue. We’ll delve into the difficulties of tracking the disease, explore the history of attempts to develop a vaccine, spotlight the latest thinking on treatment, and tell the stories of patients who know these issues firsthand. Living With Lyme: Your Feedback By Martha Little July 04, […]

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Trailer: “Under Our Skin”

We didn’t know our complex of symptoms was based on compound tick infections until we saw this movie. Believe me, the recognition was immediate and certain. Seeing the cases in the movie, extreme as they are, was like a light going on in a cave. I, for one, eventually recognized symptoms dating back to 1978 […]