Lyme Victims Depend on Each Other

Lyme Victims Depend on Each Other” | by Olivia Hull | The Vineyard Gazette | July 13, 2012

Kristen Kusama-Hinte arrived on-Island in early June. A couple of weeks later, her son had a fever. She tended to him, sleeping on the floor by his side. She checked her own and discovered a 100-degree temperature and didn’t pay much attention. She got a stiff neck and again didn’t pay much heed. When a terrible headache hit, she knew something was wrong.

She thought she was being assaulted by a horrific flu, until part of her face became paralyzed. “I was completely immobile,” she recalled. “All I could do was moan and groan.” The pain, she said, was worse than two bouts of natural home births. When she noticed a small rash on her arm, she finally went to the clinic and was diagnosed with acute Lyme disease. She was treated with the antibiotic Doxycycline, and symptoms subsided, but her doctor wouldn’t answer her most pressing question, “Am I cured?” “She kept saying, ‘You got the Lyme and you’re treating it,’” she said. “I wanted to know I was not dealing with a chronic disease.”


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