LYME STORIES: Dr. Debbie & Jade Heverly

Ours is a “double story”. There are two of us whose lives have been intertwined and interrupted by the “mysterious” illness that turned out to be chronic neuroborreliosis.

I am a Medical Doctor who was board certified in emergency medicine and family practice. I was educated in Pennsylvania schools and at Temple Medical, practicing for decades in western New York and central Pennsylvania. I was considered to be a good physician by my peers and practiced emergency medicine for two decades without a malpractice suit filed against me. Yet, I lacked the educational tools necessary to help myself or make a proper diagnosis to save myself or my daughter from these past decades of chronic illness. We sought specialist care for a diagnosis for over a decade to no avail. Born and raised also in endemic areas, my husband of decades (now ex-) is a board-certified physician too, but I remained undiagnosed.

I don’t know if I can make this deadline, but I’m going to try. In order to write this, I have to use the drug Provigil to be able to stay on track. I have to spell-check in such a way that it shows up at the same time on the screen with my work so I don’t forget it if it closes before I get it written down correctly.

I have avoided sharing my story because I don’t want to own this diagnosis. It has been a nightmare out of which have always wanted to step out and walk clear. But I feel I have a duty as a physician to add my voice because just maybe the medical doctor in my story could make a difference. I would like to make a difference, to spare others our struggle. I feel I owe this effort not only to other Chronic Lyme patients but mostly to my daughter, Jade.

Jade has been a profile in courage and a hero in every sense of the word. She is a Lyme warrior, determined that her life will make a difference in the silent epidemic that robbed her teenage years of everything normal.

Our Timeline

1970’s and 1980’s

I was actively practicing emergency medicine in Hawaii, western New York and central Pennsylvannia and enjoying my work to the fullest. I was a member of the NY Board of Regents on the Board for Massage. I was a pilot, flying a Cessna 177 RG and was comfortable flying solo from western New York into New York City for meetings. I had supported myself while in school from elementary school through medical school as a musician. As a hobby, during my time in western New York, I became one of the original members of a local band called 10,000 Maniacs. I was an athlete, could run 9 minute miles and regularly exercised 5 days a week and ran about 30 miles a week.

1973

The only tick bite I ever knew about was on a white-water trip in Arkansas. I am told this was not the origin of my Lyme disease. I had no bull’s eye rash and no obvious sequelae.

1974

I had a few issues with new onset neck pain and new onset esophageal reflux during my internship. XRays and Upper GI studies were normal. No other testing was done. The reflux resolved but the neck pain always persisted after that. I treated it with pain meds.

1975

I developed migraines for the first time which responded to treatment. I was working, jogging and surfing, really enjoying life to the fullest.

1976

My husband cheated on me the first time I worked a shift opposite him – in time, we resolved it, telling those that knew about it that our marriage was “stronger than ever”.

1986

We joyfully became pregnant with Jade. I was robustly healthy prior to and during the pregnancy until my 7th month. I had an acute episode of right hip arthritis that presented with pain so intense I had to be taken out of a staff meeting by wheelchair. The diagnosis was “pregnancy related”. I was unable to work on my feet for the last two months of my pregnancy.

1987

Jade was born in an extremely difficult delivery. Despite my athleticism, I was somehow unable to push. She was delivered by vacuum extraction with a huge Hawaiian nurse standing on a stool and bearing down on my abdomen. We recovered.

Life was good and things seemed to be okay.

1988-1991

Jade seemed to be thriving but her pediatrician was concerned that she could be having ear infections and chicken pox twice while I continued to breast feed for 18 months.

She developed diarrhea so severe that we took her to the Cleveland Clinic. She was worked up there for allergies. Things leveled out, everything seemed to resolve.

I was dealing with life-altering neck pain which responded to pain medication, acupuncture and Cyriax manipulation. It became manageable and I was able to back up the car and park again.

May, 1991

Life changed for me overnight. I went to bed one night healthy as usual and woke up sick, brain-fogged, with a headache, low grade fever and diarrhea. I was so ill I could not drive home to Jamestown (New York) and I went to the emergency room in Altoona (Pennsylvania) where I was vising family. I have never returned to the robust health I had known prior to this episode. The fever lasted 5 days, the sore throat lasted non-stop for 6 months and the brain-fog is now part of my life. I have never regained my pre-illness level of well-being and stamina.

The ER doctor in Pennsylvia documented the fever, overall lymph adenopathy and did lab work that revealed an initial negative monospot test but subsequent incredibly high EBV titers clearly demonstrating the four-fold increase on acute and convalescent titers. The titers never came down.

After six months of not being able to get out of bed (which would turn into 18 months), or care for my 4 year old child, or remember 3 things without a list; I was suffering serious recurrent infections. Both physicians who were caring for me, an internist and an infectious disease specialist, made the diagnosis of “Chronic Fatigue Immune Deficiency Syndrome”.

I was no longer able to work, play music or take care of my home or my child. I would never fly an airplane again.

Within this first year of my illness, my husband told me to “take Prozac or I’m leaving you” and would cheat on me repeatedly. He impregnated one of our nurses. This time I did not know and would not know until after our divorce almost a decade later. At the time when I suspected there was something going on, he flattened me by telling me that “I was paranoid because of my illness and that there was nothing going on.” I believed him totally. The Prozac made me more tired.

1992

Jade started kindergarden; she was apparently healthy and thriving. I adjusted to life as a mom with Chronic Fatigue.

1994-1996

Jade started to have issues with allergies and chronic sinusitis. Her allergist/immunologist was alarmed at CT scans showing complete filling of all sinuses. Prolonged treatment for several months with antibiotics and allergy treatments and desensitization brought a resolution.

My issues at that time were fatigue in conjunction with recurrent pneumonia, herpes infections, and yeast infections which responded to long-term antibiotic treatment.

We once again seemed to be okay. Jade was functioning in a tough learning environment in a private school as an A student. She was a star in dance, theater, voice, piano and violin at the school. She was an athlete, competing in outrigger canoe races. Her life was full of friends and success in and around school.

I was following the advice of the CFIDS experts across the country to “live within the parameters of this illness” in order to survive and live a long life with my daughter. When she was at school, I slept so I could be functional when she came home. Sometimes other mothers would bring her home if I could not make the trip back to school to get her.

I tried unsuccessfully to sing in my church choir but my vocal chords were too damaged to be reliable. I couldn’t remember the words, and I was too fatigued to make it through the service.

I lost my driver’s license because I could not pass the written exam after three tries. I lost my emergency medicine board status because I could not take the recertification exam and knew I could not pass it anyway because I had just lost my driver’s license.

Jade was okay as long as we followed the advice of her allergist/immunologist. We constantly monitored and treated any early sinus infection. Her immune test markers were abnormally low. But Jade thrived in all her activities.

By this time, my 30-year marriage with was over. In a nutshell, a chronically ill wife was not in the cards for Jade’s father. His family background was ill-conducive to the hard work and commitment necessary to weather a long storm with a chronically ill spouse. His approach was to established a new parallel life: an existing child I did not know about with another on the way. Thankfully, I became Jade’s primary and legal custodian.

October, 1998

Jade’s life changed in one day. She was injured in a life-threatening accident, falling 14 feet through a second-story floor that gave way while playing hide and seek at her girlfriend’s house after school. She had no broken bones and walked away from the accident with me, but she had suffered a momentary loss of consciousness accompanied by a near-death experience. She has never regained her pre-injury state of health and stamina.

Jade’s Story after the Accident

1998

Symptom #1: overwhelming fatigue, the end of Jade’s extracurricular activities and her life as she knew it with friends and, later, even school.

First, Jade was unable to audition for a lead-vocal position in a play that she had been counting on. She went in person to tell the auditioner that she was physically exhausted and unable to perform or sing at all, which was crystal clear to anyone who looked at her. Then her voice teacher called me in to ask me about the specifics of the accident. She said Jade had been “stellar” but that the accident seemed to have “completely knocked the wind out of her sails”. She recommended that Jade not sing at all for a while and offered to attest in any way how deeply this trauma had affected Jade.

Next, Jade gave up competing in outrigger canoe racing (which had been her social base), as well as musical theater productions and all dance classes. She was too tired.

Then, Jade gave up violin and orchestra. It was too painful for her to play because her neck was permanently damaged from whiplash.

And Jade gave up piano lessons and performances (which she had done since age 4) because she couldn’t keep up with her school work and get enough rest.

1999

Jade could no longer keep up at school and was starting to have a cascade of problems. She could no longer see the blackboard and had to get glasses. Her refraction prescription was changing every six months or less. She needed braces for the first time for a malalignment of her jaw. She developed a severe case of malignant otitis externa. In retrospect, this was a key indicator of Chronic Lyme disease and the subject of the cover story that very month for Emergency Medicine journal. Ironically, I was no longer able to work and missed that issue. No one in Hawaii made the connection to Chronic Lyme which was now overcoming her weakened immune status as a result of the traumatic injury.

I took her out of school when she could no longer get her homework done and when she could not enough sleep to get up in the morning for class. We tried a charter school but she had already done the work at their level. I home-schooled her and she flourished with lots of time to sleep and work as she could.

As a result of the divorce, Jade and I lost every home we knew. We were renting an apartment in Honolulu for us, our dogs, cat and bunnies. Our horses were safe on a friend’s property in western New York. We were holding our own.

2000

We were able to travel a bit with home-schooling, on a very well-rested, slow schedule.

We visited Paris where our cousin was head of the Secret Service at the French Embassy, and we visited London with another family.

But then Jade’s dad accused me of “child endangerment” in an effort to stop paying child support, apparently the basis of his position was that Jade was not in school. We still did not know that he had other children for whom he was financially responsible. This was a best-kept secret which we are now able to laugh about and say he did a “Schwarzenegger” on us. We’ve had no contact with him in over a decade. The endangerment charge did not stick but Jade’s home-schooling was over.

I took Jade back to my hometown and enrolled her in the same public school that her pre-K friends went to. She scored 125% on the first exam; the extra credit was for material we had covered in home schooling. She was able to keep up with the work but was again missing school with sore throats and tonsillitis. After more than three episodes of documented tonsillitis, the ENT doctor recommended removing her tonsils.

With a loan from our long-standing bank in Pennsylvania we were able to buy a place of our own again, in Hawaii with plans to stay there after Jade’s surgery.

July 2000 – July 2005

Jade and I went from bad to worse medically and financially. This part is difficult to relive in the telling.

In July, 2000, Jade was set to have surgery for her tonsils in Honolulu. By this time, I was feeling the financial effects of co-pays and out of pocket expenses for the two of us so I had to make sure her surgery was 100% covered and Honolulu was the base for my BCBS. I knew all the doctors in Honolulu, as well as Jamestown, NY and Altoona, Pa. because I had practiced there and was considered a reputable peer by my colleagues. I took Jade from the ENT whom I knew in Altoona to the ENT whom I knew in Honolulu for the surgery with each of them agreeing that it was a necessary insurance move. However, the ENT in Hawaii discovered abnormalities in Jade’s lab work when she was already on the operating room table. He cancelled her surgery immediately and referred us to a specialist at UCLA. He felt this was necessary in the event she had bleeding problems based on her lab work.

Jade was put on thyroid replacement for the first time by her doctor in Honolulu, endorsed by the endocrinologist there.

On July 26, 2000, Jade had the surgery at UCLA with bleeding complications that were handled appropriately. The ENT said she had never seen tonsils so riddled. She described it as swiss cheese pockets filled with stinking sebaceous cyst material. Recovery was prolonged over six months due to anemia, extreme fatigue and developing endocrine issues.

I got our place in Honolulu rented so I could afford to rent a place in Santa Monica close to UCLA.

We had to make a new school plan. She couldn’t go back to Altoona or Hawaii as both schools had 75% attendance requirements that Jade would not be able to make. The principal in Altoona helped me make a plan to get her into school in Santa Monica. SMASH was a public alternative school, where it was okay to focus on health first and education second. She was able to keep appointments at UCLA and outpatient care and keep her good grades.

And once again, her dad made his move and stopped paying child support because “she was not in school”.. but she was in school and after six months of non-payment, on threat of losing his medical license as a dead beat dad…he paid the six months of back payments without interest.

She finished a year of treatment at UCLA; the first six months for surgery and recuperation and work-up of a cascade of newly emerging endocrine abnormalities including treatment for hypothyroid, hyperinsulin, hypertestosterone, adrenal failure. CT scans of the head for bizarre dizziness and black outs. I began asking if the accident was behind all of this. I had no knowledge still of chronic lyme disease. My question to the endocrinologist as to whether or not the accident caused these symptoms was quashed. However, the second six months of her time at UCLA was spent in physical therapy and rehab for “total body whip lash” related to the accident. She finished medical care in August, 2001 and we returned to Honolulu for Jade to begin high school with her kindergarden classmates there.

Jade’s problems continued. She was on a school schedule but without any extracurricular activities, too tired to attend any school functions, dances or parties. By this time there were few friends even calling her any longer.

We were chasing one endocrine problem after another with specialist care to no avail.

In November, 2001, we learned that our home was being foreclosed on. I was behind 3 months in homeowner’s association dues, but not with my bank, when we returned from the year at UCLA. The arrears were coming down, timely monthly payments were being accepted and nevertheless we were notified of the foreclosure. My bank was telling me not to worry.

In December, 2001, she continued with hypothryoidism and was diagnosed with polycystic ovary syndrome. Once again, we proceeded on the assumption that we were on the right path, the right treatment and could resume a normal life.

Jade participated in a musical theater production in December, 2001, Rent, and when she stepped forward for her solo, I fell apart crying to hear her crystal clear, beautiful voice making music again after being silent for three years.

And then we learned that her dad had not paid school tuition for three months and she could not return to her school after the Christmas holiday. Jade’s great aunt and uncle from California immediately offered to pay the arrears so she could return to school after Christmas. An attorney took my ex to court and got the money as required in the divorce decree for him to pay for Jade’s private education.

2002

I obtained Social Aecurity benefits and medicare in 2002, dating back to the presentation of illness — May, 1991 as date of onset.

Jade participated in Les Miserables in April, 2002 and again, I cried tears of joy – not knowing that would be her last role.

She developed acute mononucleosis during the production and ended up missing school so as not to let the production down. By the end of spring term in 2002, she was no longer attending class to the 75% requirement. This is a kid who absolutely loved school, learning and all aspects of the educational experience and in addition had always been an A, honor student.

We made a plan with the school for the 2002-2003 term to be classes only after a long and restful summer. It was mutually decided that she was not well enough to attend summer school to make up any classwork.

By spring of 2003, Jade came down again with mononucleosis. She was basically still bed-ridden when we lost our home in August, 2003. We were evicted by sheriff.

We lost our home over legal fees alone to the homeowner’s association. We were current with our bank and our efforts to catch up arrears of less than $5k as well as timely monthly currents to the homeowners board of directors were refused.

Because of Jade’s medical condition, we made a simple move from one floor of our building to the apartment below. Basically Jade got out of one bed and into another. Our plan was to rent that apartment until we prevailed on appeal as to the loss of our home and returned to it, or if we lost on appeal, then to continue as tenants until Jade finished school in 2005.

That was the plan. But this time Jade had no bounce to come back with and after 6 weeks in the rental apartment, I began to develop skin lesions for the first time.

The 2004-05 school year was daunting as far as medical challenges. We could not regulate Jade’s endocrine problems. Her thyroid issues seemed beyond control. We were being told to go to the ER for help by Jade’s endocrinologist.

My skin lesions were out of control and we were wrapping me in saran wrap with sulfur impregnated vaseline at night. My regular physicians in Honolulu thought it was something in the rental apartment and/or stress related.

We sought help for Jade from a specialist in Boston at Thanksgiving vacation in 2004. He assured us, rightly so, that he could bring this under control and help her complete school.

By December, 2004, the Deans at Jade’s school were suggesting that Jade leave Punahou for the 2005 semester and not graduate with her class. I met with them accompanied by a Social Security disability advocate to demand the school accommodate Jade in some way to allow her to finish. The agreed upon plan during that meeting was that if Jade could keep a very limited schedule, one class in the morning and one class in the afternoon, then she could walk with her class but receive a diploma only after all class work was completed. She would not receive grades from the classes she had not attended 75%, even though she had made A’s in all of them on exams. They told us that the school had not accommodated a single student in 100 years, but because Jade was an asset to the school, they were willing to give her a chance.

January, 2005

With the new thryoid medicine, Jade was doing much better. She was able to attend one class in mid morning, come home for specific diet home prepared lunch and a nap, then return for one class in the afternoon and then back home. She was stable on meds for elevated insulin and testosterone and adrenal support. Sometimes she was too tired to eat before her nap, but either way, we were able to keep this schedule. It was very important to Jade to walk with her class.

February, 2005 We learned we had lost our appeal when the new buyer of our home demolished it with jackhammers in a no notice, no permit demolition. It caused the ceiling of our rental apartment below to vibrate, causing friable asbestos to dislodge, become airborne and rain down on Jade and me as we napped on her bed between classes. We were told by the state inspectors that the building was known to be asbestos ridden and that we should hazmat evacuate to a hotel until proper permits, clean up, etc. had resolved any issues. We moved to a hotel room that day and spent the rest of Jade’s school year there without a kitchen.

Jade’s medical condition deteriorated once we moved to the hotel. I was unable to prepare her food. She developed digestive symptoms for the first time and gall bladder issues for the first time. There were times when I could only get her to the doctor with a wheel chair because she could not walk. We questioned whether she was developing multiple sclerosis because she had trouble opening her eyes. But we were keeping the school schedule against all odds.

March, 2005

One of my doctors told me she knew what I had. She referred me to a website for Morgellon’s Disease and I called the physician in charge the same day. I made several appointments to see him which I had to cancel from March to July because Jade was too ill for me to leave her and his office was in Texas. When I called to reschedule the second time, he asked me for some detail on what was going on with Jade. When I finished, he told me that he was sure we both had Lyme Disease and asked me to get tests done in Hawaii. He said although the tests available in Hawaii would probably be negative, it was all we could do from there. Our doctor did the tests (IFR) and we were both positive. In addition, Jade tested positive for strongyloides. We made appointments to see him as soon as school was out in July, 2005.

June, 2005

Jade walked with her class beaming and saved her tears over her blank diploma for a quiet moment alone with me at home.

I attended her graduation wearing clothing to cover my skin lesions and I was becoming increasingly disabled with back and hip pain.

July, 2005

We left Hawaii for definitive diagnosis and treatment in Texas. Jade’s gall bladder was nonfunctional, she had not been able to take solid foods for months and her bowel was shut down. She had to have a colonic to be able to get on the plane. I thought she was going to die. She had no treatment for the positive IFR for lyme or the strongyloides. Her internist had put her on steroids to enable Jade to walk with her class which scared me so much that I insisted they be stopped after two days. Although we had two wonderful, supportive women doctors in Hawaii, one trained in Hawaii and one trained at Columbia, neither they (or I) knew what to do for, or anything about, chronic lyme disease. I am blessed that my daughter and I survived.

We were evaluated in Texas by William Harvey, M.D. All tests (IFR, Igenex, Bowen) were extremely highly positive for chronic lyme disease, babesiosis and strongyloides infections. Dr. Harvey did not think that I got this from the only tick bite I ever had in 1973. He said he believed I had it simply because I was exposed in endemic areas in Pa and NY. He felt I had given it to Jade during childbirth but it did not fully manifest in her until after her accident caused significant stress and lowered immunity. Harvey felt that Jade’s lyme disease had “become chronic” and that I was in “end stage” chronic lyme and morgellon’s.

We began treatment with IM ceftriaxone immediately. After two months of IM therapy with noticeable improvement but not complete recovery, we switched to IV therapy with complete resolution of all symptoms by December, 2005 after two additional months on the IV therapy.

2006

Jade had complete recovery from all gall bladder problems, was able to eat solid foods again and her bowel was working, She no longer needed dark glasses or a wheel chair.

I had resolution of almost all skin lesions, regained my balance and equilibrium and no longer needed to use a walker for the hip pain.

Dr. Harvey had lost his license to practice medicine in Texas because of his work with lyme patients and had moved elsewhere. We had no one to care for us once the protocol for ceftriaxone therapy was completed. We thought we were well, finished with antibiotics and I attempted to get us back to Hawaii.

March, 2006

Jade relapsed within a month and had surgery in California to remove her gall baldder and had numerous treatments including hyperbaric and rounds of parasite meds, which again seemed to cure her, for awhile..

Once again, because Jade was out of school, her dad stopped child support payments. He had never paid anything at all for any of her medical care. In addition, her social security benefits under me were cancelled because she had turned eighteen.

When an attorney tried to help us by getting the divorce decree enforced as to Jade’s dad’s duty to pay unpaid medical which dated back five years to the divorce, my ex brought up charges against me of Munchausen’s by proxy.

April, 2006

Jade’s gastroenterologist in Santa Monica, California gave me an article about Bell’s Palsy of the Gut in chronic lyme disease patients, by Virginia Sherr, M.D. We were in her office near Philadelphia, Pa. within the same week. In addition to being an expert in the field of neurolyme, Dr. Sherr is the world authority on Munchausen by proxy and wrote my defense. The charges were withdrawn against me.

Jade had seen Raphael Stricker, M.D. in San Francisco, Joseph Burrascano, M.D. in Long Island and still her father would not agree to pay what he owed and got a judge in Hawaii to order that Jade be seen in Hawaii by a physician of her dad’s choice before any decision was made as to what he would be required to pay of the $100k+ in medical bills. Jade was too ill to travel there and we knew there was no lyme specialist on the island. Dr Stricker was listed as the closest specialist to Hawaii and he had already evaluated, diagnosed and treated Jade.

I made the decision, with Jade, to give up any and all monetary claims against her father in exchange for him just leaving us alone so we could heal. In exchange, he cut Jade out of his will, properties and life insurance and I gave up any future claim for alimony in the divorce decree if I lost my disability benefits. We were done with him. We had to be done with him, his chaos and stress for us to have any chance at all for recovery. His lack of professionalism as a physician and more importantly, his lack of humanity as a father and spouse of 30 years was more than we could cope with any longer. Money for us was far less important than a chance at recovery.

We moved from California back east in July, 2006 when Jade finished part-time classwork at Santa Monica College on the schedule approved by Punahou for eventually obtaining her high school diploma. Jade was adamant that she would not settle for a GED or anything less than her usual honor grades no matter how slow she had to go. I supported her completely.

I felt our only chance of sustained recovery was with physicians in the endemic areas close to my own medical school in Philadelphia.

We became patients of Dr. Burrascano in September, 2006 and we were started on IM Bicillin LA. When he retired, we became patients of Dr. Horowitz and we are with him to this day.

2006-2007

We received 18 months of treatment with IM Bicillin LA and recovered significantly but not to the degree we had achieved after 3 months of ceftriaxone.

2007

BCBS in Hawaii dropped our coverage which we had since 1998.

I was able to obtain Blue Cross Blue Shield in western New York as a life-long member of the medical society.

2007-2008

We graduated to oral antibiotics along with the Cowden protocol with significant improvement.

2008

Jade received social security disability benefits and medicare with onset dating back to head trauma in 1998.

2008-2010

We continued on oral antibiotics with the Cowden protocol.

2009

Our premium for our Blue Cross Blue Shield policy with the Medical Society of Western New York, went from $1,000 a quarter in 2007 (with Jade and I both on medicare as primary) to $2,000 a month for 2009 (again, with medicare primary for both of us, which means that anything medicare doesn’t cover, Blue Cross Blue Shield won’t cover either. These huge Blue Cross Blue Shield premiums didn’t cover anything that medicare did not cover, so we could no longer afford it. Fortunately, I am a veteran so we were able to each get an affordable medicare supplemental policy from USAA.

June, 2010

Jade completed her requirements and obtained her Punahou high school diploma.

Summer, 2010

Jade was able to begin in person classes again for the first time at a community college, part-time.

December, 2010

Jade was able to come off oral antibiotics and switch over to Byron White Formulas. These herbal formulas made a huge difference and Jade started to feel like she was feeling normal sometimes again.

2010 to 2012

Jade has gradually been able to attend classes from a community college to honors college at a university. She has made the part-time student honor role.

2012

Jade got her first ever paycheck as a part-time teacher’s assistant for a microbiology professor and class in which she had achieved the highest grade.

Jade continues to do well on Byron White Formulas alone, despite the fact that her Igenex tests remain IgM positive after almost 7 years of treatment, her MDL tests continue to show IgM positive Epstein Barr titers and HHV6 titers and her CD 57 test is at 26.

Jade is majoring in pre-med with a dual degree in Public Health and epidemiology. Her goal is to become a physician and make a difference in the world of Lyme disease identification and early treatment, so no child ever misses adolescence and all the teen-age years and moments that Jade missed by not having a diagnosis or proper treatment, so no honor-student ever goes through what she did being called a malingerer and being drug tested in the face of life-threatening illness.

I continue treatment. I believe it is justified to say that for every two years of infection with undiagnosed Lyme, one will require one year of treatment. I’m not there yet. When I try to go off antibiotics, I can’t finish my sentences. I’ve had this longer than Jade. I am better on antibiotics than off antibiotics.

I am so grateful that my daughter has her life back thanks to Dr Sherr and Dr. Horowitz and Dr. Byron White, Dr. Harvey and Dr. Lawler.

I will catch up to Jade, I know it!

Although we never got our home back or the hundreds of thousands of dollars in lost equity, Representative, Richard Geist, 79th district in Pennsylvania has contacted the New York OAG on our behalf. At the time of the original loan in Pennsylvania, we were constituents of Mr. Geist. We have hope and confidence that he can resolve this successfully so that we may recover financially as well as medically.

Thank you for your efforts, Senator Blumenthal and Senator Gillibrand.

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